Matt Hay

Matt Hay had a long journey toward deafness and even longer journey toward learning to “hear” again with an experimental brainstem implant. He first publicly shared his story on a National Public Radio. The intimate, funny and authentic peek at what it’s like to start a career, fall in love and build a life while battling a rare disease inspired actor Channing Tatum and Paramount Pictures to option the motion picture rights to Matt’s life story.

When Matt isn’t adding tracks to the soundtrack of his life, he passionately supports the hearing loss community. He’s proudly served as a Congressional lobbyist for neurofibromatosis (NF) research funding, the genetic disorder that caused his deafness, and has raised money for NF research by doing endurance events, including an Ironman Triathlon and most recently, the Boston Marathon.

Matt currently serves the rare disease community as the US Director of Advocacy for a biopharmaceutical company. He lives in Westfield, Indiana, with his wife and three children. Visit www.HearMattHay.com.